
465178351
2015
Milton, GA 30004 USA
curenfwithjack.com
CureNFwithJack
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News

Stay in the loop with the latest updates, research breakthroughs, and ways you can make a difference in the fight against Neurofibromatosis. Subscribe to the CureNFwithJack newsletter and join the movement for a cure! Click the link below to subscribe! curenfwithjack.org/contact #CureNFwithJack #EndNF #NFawareness (fb)

🔬 New NF1 Study Now Recruiting! Researchers are diving deeper into NF1 Optic Pathway Gliomas (OPGs) to better understand vision loss mechanisms and explore restorative strategies. This groundbreaking study aims to assess how different eye tests and imaging devices can help measure vision changes in individuals with NF1. 📢 The study is currently recruiting individuals 8 years or older who are living with NF and individuals who are not affected by NF (“healthy control participants”) to undergo various non-invasive eye tests. Travel expenses will be covered for the subject and one legal guardian, and the subject will receive a stipend as well. Your involvement could help shape future treatments and bring us one step closer to better care. 📍 Learn more & enroll today: research.chop.edu/neurofibromatosis-1-optic-gliomas-understanding-the-mechanisms-of-vision-loss-for-visual-restoration #CureNFwithJack #NF1 #EndNF #NFStrong #ClinicalTrials (fb)
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About the organization
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WHY WE FIGHT TO CREATE A WORLD WHERE NF NO LONGER EXISTS CNFWJ is committed to accelerating medical research driving community action and raising funds to end NF. With Jacks help CNFWJ has encouraged thousands of people previously unfamiliar with NF to learn donate and spread awareness about NF so that the vision of a cure can be realized. CNFWJ holds multiple events and golf tournaments throughout the year raising over a million dollars on its own behalf as well as other NFrelated entities including the Childrens Tumor Foundation and Cupids Undies Run. READ MORE IN THE NEWS Accelerating Medical Research Raising Funds to End NF Driving Community Action Groundbreaking news.
Education N.E.C.