International Scleroderma Network

The International Scleroderma Network is a nonprofit organization dedicated to providing research, support, education, and awareness for scleroderma and related illnesses worldwide. It operates as a 501(c)(3) public charitable foundation, aiming to enhance understanding of this rare disease and improve patient outcomes.

Mission

The organization focuses on delivering services that cater to the diverse needs of individuals affected by scleroderma, including providing information on diagnosis, symptoms, treatments, and clinical trials. It also offers support services for patients and their families, facilitating a community where individuals can connect and share their experiences.

Activities

• Research and Awareness: The organization supports and promotes research into scleroderma, raising awareness about the disease and its impact on those affected.
• Support Initiatives: It provides support services such as forums and communities for those living with scleroderma, allowing them to share their experiences and find mutual support.
• Education: Through educational resources and guidance, the International Scleroderma Network helps individuals understand the complexities of scleroderma and navigate treatment options.

Impact

The organization's efforts contribute to a global understanding of scleroderma, fostering collaboration among healthcare professionals, researchers, and affected individuals. Its initiatives help to address the diverse experiences of those living with the disease, offering a comprehensive approach to managing and understanding scleroderma.

Operations

Established in 2002, the International Scleroderma Network operates as a grassroots charity, relying on donations and volunteers to continue its mission. It serves as a valuable resource for those seeking information and support related to scleroderma and similar autoimmune diseases.

Legacy

As a leading nonprofit in the field of scleroderma, the International Scleroderma Network plays a significant role in advancing research and improving patient care globally. Its commitment to awareness and education helps to reduce the isolation often experienced by those affected by this rare disease.

[1] https://worldsclerofound.org [2] https://sclerodermainfo.org/resources/ [3] https://srfcure.org/research/conquer/ [4] https://scleroderma.org [5] https://sclero.org