PA LYME RESOURCE NETWORK
PA Lyme is a non-profit 501(c)(3) organization, networking all-volunteer support groups across the state. Lyme education, advocacy, support, prevention. The mission of the Pennsylvania Lyme Resource Network (PALRN) is to provide patients, families and communities with a broad spectrum of educational information and resources to prevent Lyme and tick-borne diseases. Our goal is to bridge the information gap so patients can make the best possible individualized health decisions, in a quickly evolving area of medicine.
PA Lyme Resource Network
Overview
The PA Lyme Resource Network is a nonprofit organization in the United States, specifically focused on addressing the needs related to Lyme disease and tick-borne illnesses within Pennsylvania. It was formally established in 2012 by individuals driven by personal experiences with these diseases.
Mission and Activities
PA Lyme is dedicated to providing education, prevention, support, and advocacy for those affected by Lyme disease. The organization is entirely volunteer-driven, relying on its network of volunteers to carry out its mission.
Programs and Services
- Education and Prevention: The organization offers educational resources to help the public understand Lyme disease and its prevention methods.
- Patient Support: Support is provided to individuals and families dealing with Lyme disease, often through community events and support groups.
- Advocacy: Advocacy efforts are part of the organization's work, aiming to raise awareness and influence policy related to Lyme disease treatment and research.
- Lyme Literate Medical Doctors (LLMDs) Referral Program: PA Lyme maintains a referral list of LLMDs across Pennsylvania to assist patients in finding healthcare professionals experienced in diagnosing and treating Lyme disease and other tick-borne illnesses.
Leadership and Governance
The organization is led by a board of directors, which includes key roles such as President, Secretary, Treasurer, and Vice President, among others. Leadership positions are held by individuals committed to advancing the organization's mission.
Operations
PA Lyme operates as an all-volunteer organization, meaning it relies on community support to achieve its goals. This structure allows it to maintain a lean operation focused on core services and advocacy. Volunteers are essential in executing the organization's objectives, from event planning to community outreach.
Impact
By focusing on education, support, and advocacy, PA Lyme Resource Network plays a significant role in enhancing awareness and pushing for better understanding and treatment of Lyme disease in Pennsylvania. Its work serves as a resource for both affected individuals and the broader community seeking knowledge about tick-borne diseases.
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