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Specifically Named Diseases Research

List of non-profit organizations working on Specifically Named Diseases Research .

Community Rebuilding

Mila's Miracle Foundation Inc

Mila fought hard against Batten disease, a rare fatal condition with no cure.

Social Rank

833

Location

Boulder

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Community Rebuilding
  • Specifically Named Diseases Research

  • 83.

Westyns Light

we are a nonprofit with emphasis on bringing awareness for CAH Congenital Adrenal Hyperplasia .

Social Rank

800

Location

Colgate

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Community Rebuilding
  • Specifically Named Diseases Research

  • 84.

ANN STEFFENS SCLERODERMA RESEARCH FOUNDATION INC

www. steffens-scleroderma. org Collaboration Drives Everything We Do The Steffens Scleroderma Foundation collaborates worldwide with researchers clinicians organizations and patients to improve the lives of those affected by rare diseases.

Social Rank

718

Location

ALBANY

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Community Rebuilding
  • Heart and Circulatory System

  • 85.

Myocarditis Foundation

Non-profit organization dedicated to helping those affected by myocarditis, educating the public/medical communities, and funding myocarditis research Myocarditis is a poorly understood, under-diagnosed and often misdiagnosed disease which can progress rapidly to heart failure and death.

Social Rank

642

Location

Kingwood

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Community Rebuilding
  • Specifically Named Diseases Research

  • 86.

Cosmopolitan Diabetes Foundation Inc

Cosmopolitan International is a chartered not-for-profit civic service organization that was founded DIABETES TREATMENT, EDUCATION & RESEARCH JOIN OUR CAUSE.

Social Rank

575

Location

Rockford

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Community Rebuilding
  • Specifically Named Diseases Research

  • 87.

My Kool Brother Inc

Director of Corporate Development & Investor at @sugar23 by day | Film Producer by night | Former child actor forever :) Leading the change for a cure My Kool Brother was founded with the goal of developing better medical therapies and treatment options for individuals with Koolende Vries Syndrome KdVS.

Social Rank

452

Location

Wilmington

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Community Rebuilding
  • Specifically Named Diseases Research

  • 88.

Virginia Diabetes Council

VDC is a 501c3 nonprofit dedicated to being an effective advocate for the issues and concerns of organizations providing diabetes management and prevention programing as well as raising awareness of diabetes and prediabetes.

Social Rank

431

Location

Chesterfield

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Community Rebuilding

Impact MS Now

Be the positive change you want to see in the world.

Social Rank

414

Location

AUBREY

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Community Rebuilding

Alagille Syndrome Alliance

The Alagille Syndrome Alliance is an international support and advocacy network for people with ALGS and their families.

Social Rank

387

Location

Collierville

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