Neurofibromatosis Midwest

Neurofibromatosis (NF) is a genetic disorder of the nervous system which causes tumors to form on th NF Midwest is committed to improving the lives of children, adults, and families impacted by neurofibromatosis in our region which includes Illinois, Indiana, Iowa, Kentucky, Wisconsin, and the eastern half of Missouri.

• Brain Disorders

• 56.

JOUBERT SYNDROME & RELATED DISORDERS FOUNDATION

The Joubert Syndrome & Related Disorders Foundation supports those affected by Joubert syndrome and related disorders.

• Specifically Named Diseases Research

• 57.

Sebastian Velona Foundation

Sebastian Velona Foundation raises funds for research and treatment in the hope of stopping the progression of, and finding a cure for, Batten Disease CLN8.

• Specifically Named Diseases Research

• 58.

ALTERNATING HEMIPLEGIA OF CHILDHOOD FOUNDATION INC

Our vision is to find the cause(s) and a cure for Alternating Hemiplegia of Childhood & provide support to AHC families #Raredisease #Spreadawareness https://linktr.

• Specifically Named Diseases Research

• 59.

The Snow Foundation

A voice for rare disease, working towards a cure for Wolfram syndrome and developing novel therapies for diabetes, vision loss, hearing loss neurodegeneration.

• Alliance/Advocacy Organizations

• 60.

Cystinosis Research Network, Inc.

Cystinosis Research Network is dedicated to supporting research, providing family outreach & educating the public & medical communities about #cystinosis The Cystinosis Research Network is an all-volunteer, non-profit organization dedicated to supporting and advocating cystinosis research.

• Specifically Named Diseases Research

• 61.

Haskins Laboratories Inc

Haskins Laboratories is an independent, international, multidisciplinary community of researchers conducting research on spoken, signed, and written language.

ANGEL FUND INC

The Angel Fund for ALS Research (Angel Fund, Inc.

• Specifically Named Diseases Research

• 63.

Oklahoma Medical Research Foundation

Discoveries that make a difference in critical areas like cancer, Alzheimer's, lupus and cardiovascular disease.