• Specifically Named Diseases Research

• 100.

Westbury Open

The annual Westbury Open is a fall charity golf scramble to raise money for Rett Syndrome research.

• Specifically Named Diseases Research

• 101.

American Society for Rickettsiology Inc

The ASR was organized in 1979 to foster exchange of information among scientists engaged in research on Rickettsiae and Rickettsial diseases.

• Specifically Named Diseases Research

• 102.

Foundation To Eradicate Duchenne Inc

Dining Away Duchenne, a premiere charity event with DC chefs is on September 25, 2018.

• Specifically Named Diseases Research

• 103.

PRIMARY ALDOSTERONISM FOUNDATION

Patient-led non-profit with a goal of advancing standards of care for primary aldosteronism.

• Specifically Named Diseases Research

• 104.

Cure Szt2

Cure SZT2 is a non-profit organization dedicated to families affected by the genetic mutation SZT2.

• Specifically Named Diseases Research

• 105.

Haleys Heroes Foundation

Haley’s Heroes Foundation wants to increase awareness and raise funds for research for Batten Disease, specifically CLN1.

• Specifically Named Diseases Research

• 106.

Sleep Consortium

Sleep Consortium accelerates next-generation research and therapy development for Central Disorders of Hypersomnolence through a data collection ecosystem.

PROPIONIC ACIDEMIA FOUNDATION

Finding better treatments and a cure for Propionic Acidemia since 2003 The Propionic Acidemia Foundation is a 501(c)3 non-profit organization dedicated to finding improved treatments and a cure for Propionic Acidemia by funding research and providing information and support to families and medical professionals.

• University or Technological

• 108.

ST. AUGUSTINE'S NATIONAL FOUNDATION

St. Augustine's National Foundation * Mission The National Foundation of St.