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Birth Defects, Genetic Diseases Research

List of non-profit organizations working on Birth Defects, Genetic Diseases Research .

Community Rebuilding

NO BABY BLISTERS

No Baby Blisters is working to finally cure the excruciating pain and death to babies with genetic blistering skin diseases, especially to save EB (Epidermolysis bullosa) babies from blisters, skin loss, extreme pain, and death.

Location

Walkertown

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Community Rebuilding

NEW HOPE RESEARCH FOUNDATION

The New Hope Research Foundation is a non-profit organization dedicated to: - Finding a genetic cure for GM2 gangliosidosis and other lysosomal storage diseases that affect the central nervous system, and - Providing hope to patients and their families currently facing the degenerative and debilitating aspects of these diseases.

Location

North Oaks

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Community Rebuilding

Pacs1 Syndrome Research Foundation

THE GOAL OF THE PACS1 SYNDROME RESEARCH FOUNDATION IS TO FIND A TREATMENT FOR PACS1 SYNDROME (A DEBILITATING NEURO-GENETIC DISEASE) IN THE SHORTEST POSSIBLE TIME-FRAME BY FUNDING CUTTING-EDGE SCIENTIFIC RESEARCH About Us Contact Registry Scientific Advisory Board Funded Research More Funding Scientific Research to find Treatments for PACS1 Syndrome JOIN US DONATE AND MAKE A DIFFERENCE TODAY.

Location

OLD GREENWICH

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Community Rebuilding

Childrens Choanal Atresia Foundation

Children's Choanal Atresia Foundation mission is to support awareness thus improve diagnosis, research to improve treatment and care, and research to identify possible genetic links and possible long term developmental issues.

Location

TACOMA

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Community Rebuilding
  • Birth Defects, Genetic Diseases Research

  • 149.

Fragile X Association of Southern California

The Fragile X Association was formed to promote public awareness of Fragile X syndrome with special emphasis on educators and health professionals; provide a forum for families of children with Fragile X to meet and share their ideas, concerns and problems; and support scientific research on Fragile X syndrome.

Location

Burbank

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Community Rebuilding
  • Birth Defects, Genetic Diseases Research

  • 150.

Ryan's Challenge, Inc.

Our mission is to raise funds for research of and raise awareness for vascular Ehlers-Danlos Syndrome.

Location

college station

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Community Rebuilding

Center for Genomic Interpretation

Our mission is to save and improve lives by encouraging careful stewardship of clinical genetics, genomics, and precision medicine.

Location

Sandy

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Community Rebuilding
  • Eye Diseases, Blindness & Vision Impairment

  • 152.

Eye Birth Defects Research Foundation Inc

The Eye Defects Research Foundation, founded in 1994, is an independent non-profit 501(c)(3) charitable organization committed to curing blinding eye disease by supporting molecular genetic, stem cell, and surgical research into the genetic defects of the eye.

Location

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Community Rebuilding

The Paige Elizabeth Keely Foundation

Raise awareness of Arteriovenous Malformation of the brain, (AVM) & Fight for earlier detection Signed in as fillergodaddy.

Location

Saint James

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