• Alliance/Advocacy Organizations

• 46.

NEW JERSEY CENTER FOR TOURETTE SYNDROME AND ASSOCIATED DISORDERS

As many as 1 in 50 individuals show signs of Tourette Syndrome – most of them undiagnosed, misdiagnosed or misunderstood.

Rocky Mountain Multiple Sclerosis Center

Patient/family-centered nonprofit providing a comprehensive and integrated wellness approach to MS, life-changing support services, cutting-edge research.

• Alliance/Advocacy Organizations

• 48.

Team Telomere

An international community for telomere biology disorders.

• Alliance/Advocacy Organizations

• 49.

SARCOMA ALLIANCE

Providing guidance, education, and support for everyone facing sarcoma since 1999.

A BREATH OF HOPE LUNG FOUNDATION

We work to improve lung cancer survival by funding translational research, providing public awareness/education for improved early detection, and offering support services to patients and families living with lung cancer.

• Health Support Services

• 51.

ASSOCIATION FOR PELVIC ORGAN PROLAPSE SUPPORT INC

To access link to request entry into APOPS closed patient support forum, google APOPS Forum.

ADNP KIDS RESEARCH FOUNDATION

ADNPkids is dedicated to helping families, care providers, researchers and medical professionals understand ADNP Syndrome aka Helsmoortel Van Der Aa Syndrome The mission of The ADNP Kids Research Foundation is to enhance the lives of people affected by ADNP Syndrome by providing family support, raising awareness, and supporting research and education.

• Alliance/Advocacy Organizations

• 53.

Cystinosis Research Network, Inc.

Cystinosis Research Network is dedicated to supporting research, providing family outreach & educating the public & medical communities about #cystinosis The Cystinosis Research Network is an all-volunteer, non-profit organization dedicated to supporting and advocating cystinosis research.

TRACHEO-BRONCHO-MALACIA AIRWAY FOUNDATION/CureTBM

Cure TBM. Tracheobronchomalacia (airway Malacia ) is a 501 c (3) non-profit that helps raise awareness and funding for research for both Peds and Adults Tracheomalacia, Bronchomalacia, Tracheobronchomalacia, & Airway Collapse non-profit supporting kids and adults Cure TBM exists to bring relief to those who are suffering from Tracheobronchomalacia, Tracheomalacia, and Bronchomalacia Airway Malacia.