Specifically Named Diseases
List of non-profit organizations working on Specifically Named Diseases .
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Specifically Named Diseases Research
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739.
Serano Group
The Serano Group works to improve diagnosis and treatment of borreliosis and other neglected health conditions.
Foundation for Angelman Syndrome Therapeutics
FAST is the premier patient advocacy organization working to cure Angelman syndrome.
AUSTIN
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Children's and Youth Services
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741.
Kids of Courage, Inc
Kids of Courage is a volunteer based non-profit organization dedicated toimproving the lives of children and young adults with serious medical diagnoses.
Cedarhurst
Martin Center, Inc.
Martin Center Sickle Cell Initiative’s mission is to aid and enhance the lives of those affected by Sickle Cell and associated disorders by providing client services, patient and family advocacy, and education.
Indianapolis
ECD GLOBAL ALLIANCE INC
The ECD Global Alliance is dedicated to the awareness, support, education, and research related to Erdheim-Chester Disease.
Deridder
Menieres Resources Inc
To engage in, promote, or support any activity designed to provide an educational and charitable resource center for people having Meniere's Disease or any other vestibular (balance) disorder.
Lee's Summit
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Museums & Museum Activities
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745.
Byrd Aircraft Recovery Expedition
The Byrd Aircraft Recovery Expedition will recover and display the first plane to land on the Antarctic continent.
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Alliance/Advocacy Organizations
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746.
Lupus Foundation of America, DC/MD/VA, Inc.
The Lupus Foundation of America, DC/MD/VA Chapter has closed as of September 2017, but the national office of the Lupus Foundation of America, Inc.
Washington
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Specifically Named Diseases
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747.
One Net One Family Inc
The mission of One Net One Family, Inc.