Specifically Named Diseases
List of non-profit organizations working on Specifically Named Diseases .
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Specifically Named Diseases
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406.
PARKINSON'S WELLNESS FOUNDATION
🌱 Our Mission is to empower people with Parkinson’s disease to live their fullest lives.
New York City
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Specifically Named Diseases
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408.
Rocky Mountain Hemophilia and Bleeding Disorders Association
TO IMPROVE THE QUALITY OF CARE AND LIFE FOR PERSONS WITH INHERITED BLEEDING DISORDERS THROUGH EDUCATION, PEER SUPPORT, RESEARCH AND REFERRAL Fostering community among those affected by bleeding disorders throughout Montana and Wyoming.
Bozeman
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Specifically Named Diseases
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409.
Hypopara Support & Advocacy Inc
Our mission is to cultivate an empowered community of patients, family members, and medical allies working together to increase awareness, advance treatment options, and improve the lives of those living with hypoparathyroidism.
Boston
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Specifically Named Diseases
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410.
Extrapelvic Not Rare
Extrapelvic Not Rare is a grassroots non-profit organization, dedicated to advance awareness, education and prompt policy changes that leads to earlier recognition, reduced mis-, and delayed diagnosis of endometriosis that lies outside of the reproductive structures and local areas EPNR’s target audience includes healthcare disciplines and general public about endometriosis as a disease with body-wide potential.
Vancouver
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Specifically Named Diseases
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411.
The Kennedy Ladd Foundation, Inc.
The Kennedy Ladd Foundation is committed to ending the suffering caused by MPS1, a progressive and life-threatening disease.
Kingston
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Specifically Named Diseases
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412.
Hemostasis and Thrombosis Center of Nevada
THE PRIMARY PURPOSE OF THE ORGANIZATION IS TO PROVIDE COMPREHENSIVE CLINICAL CARE TO PERSONS AFFECTED BY INHERITED BLOOD DISORDERS AND TO ADMINISTER PROGRAMS SUPPORTED BY FEDERAL GRANTS AWARDED BY THE DEPARTMENT OF HEALTH AND HUMAN SERVICES HEALTH RESOURCES SERVICES ADMINISTRATION (HRSA) AND BY THE CENTERS OF DISEASE CONTROL (CDC), INCLUDING GRANTS RELATED TO HEMOPHILIA AND SICKLE CELL DISEASE.
Las Vegas
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Specifically Named Diseases
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413.
Marshall-Smith Syndrome Organization of the USA Inc
The mission of Marshall-Smith Syndrome Organization of the USA, Inc.
Legal name of organization: Marshall-Smith Syndrome Organization of the USA