Specifically Named Diseases
List of non-profit organizations working on Specifically Named Diseases .
-
Specifically Named Diseases
-
343.
Mebo Research Inc.
Public Charity 501c3; research genetic & acquired diseases, ie,TMAU, resulting in malodor; volunteer administration international testing & research.
177
Miami
-
Specifically Named Diseases
-
344.
United Porphyrias Association
The Future of Porphyria. Raising Awareness, Research and Therapies The United Porphyrias Association is committed to improving the quality of life of the porphyria patient community and is relentlessly focused on advancing disease awareness, research, and therapies in all the porphyrias.
172
Bethesda
PROJECT HEALING HEROES
We help combat veterans, service members and first responders overcome invisible wounds of trauma by awakening and strengthening resilience to stress.
166
China Spring
-
Specifically Named Diseases
-
346.
Society for Thermal Medicine
Our mission is to significantly improve patient treatment outcomes by advancing the science, development and application of Thermal Therapy.
157
GLEN ALLEN
LINDA CREED EPSTEIN FOUNDATION
Since 1987, promoting breast cancer awareness and bringing free mammograms and tests to women in our communities.
156
Philadelphia
-
Specifically Named Diseases
-
348.
RAISIN FOR RETT FOUNDATION
We fund multiple high-quality organizations working on behalf of those with Rett Syndrome and related disorders.
153
DE PERE
Brainy Camps Association
Brainy Camps Association is a consortium of condition specific, medically managed, residential and family camps for children with chronic health conditions.
133
Silver Spring
Awarding Hope
Awarding Hope is a non-profit organization dedicated to improving the lives of people diagnosed with Multiple Sclerosis by assisting them with education about treatment options and assistance in obtaining alternative treatments.
114
HELENDALE
-
Alliance/Advocacy Organizations
-
351.
ARPKD/CHF Alliance
The ARPKD/CHF Alliance is only organization in the world solely committed to both Autosomal Recessive Polycystic Kidney Disease and Congenital Hepatic Fibrosis.
103
Kirkwood






