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Specifically Named Diseases

List of non-profit organizations working on Specifically Named Diseases .

Community Rebuilding
  • Specifically Named Diseases

  • 235.

SETBP1 Society

President of SETBP1 Society and Parent Advocate for SETBP1-HD SETPB1 Society's mission is to provide support to individuals with SETBP1 haploinsufficiency disorde Our Mission is to provide support to individuals with SETBP1 disorder and their families, to promote discussion and fund research, and to bring awareness and education to the public.

Social Rank

1141

Location

Austin

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Community Rebuilding
  • Specifically Named Diseases

  • 236.

Wylder Nation Foundation

WARRIORS in the Fight Against Lysosomal Storage Disorders.

Social Rank

1140

Location

Scottsdale

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Community Rebuilding
  • Specifically Named Diseases

  • 237.

DYSLEXIA ASSOCIATION OF THE PENNYRILE INC

A nonprofit serving individuals with dyslexia and other related differences Dyslexia Association provides screening services, educational tutorial, and community education on dy "Provide screening, tutoring, advocacy and support services for individuals with dyslexia and related learning differences" 2708855804 Mission Statement Provide screening tutoring advocacy and support services for individuals with dyslexia and related learning differences Vision Statement Barrierfree learning in our community for those with dyslexia and related learning differences Slogan Building Bridges to Reading News Information About Us The Dyslexia Association was organized in 1970 by a group of parents teachers and other individuals interested in learning disabilities.

Social Rank

1128

Location

Hopkinsville

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Community Rebuilding
  • Specifically Named Diseases

  • 238.

LETS KICK ASS AIDS SURVIVOR SYNDROME

5 June 2023 #HIV #LongTermSurvivors Awareness Day Let’s Kick ASS—AIDS Survivor Syndrome is empowering HIV Long-Term Survivors to thrive through connection, engagement, and meaningful action since 2013.

Social Rank

1125

Location

SAN FRANCISCO

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Community Rebuilding
  • International Relief

  • 239.

Bwenzi

Bwenzi is an initiative to take on the global issues of health and education.

Social Rank

1100

Location

Brooklyn

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Community Rebuilding

AID Upstate

Preventing and treating HIV through advocacy, client services, education and prevention.

Social Rank

1100

Location

Greenville

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Community Rebuilding
  • Specifically Named Diseases

  • 241.

Parkinsons Nebraska

Deeply rooted in Nebraska, our focus is on helping patients with Parkinson's, their families and caregivers in our state and in nearby communities.

Social Rank

1100

Location

Omaha

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Community Rebuilding
  • Specifically Named Diseases

  • 242.

Tennessee Camp for Diabetic Children

2 week summer camp for children ages 8-15 with Type 1 diabetes TCDC is a residential summer camp near Chattanooga, TN for children with Type 1 (insulin dependent) diabetes.

Social Rank

1089

Location

Hixson

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Community Rebuilding

DUP 15Q ALLIANCE

Through our work to raise awareness and promote research into chromosome 15q duplications, we seek to find targeted treatments so that affected individuals can live full and productive lives.

Social Rank

1081

Location

Matthews

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