Specifically Named Diseases
List of non-profit organizations working on Specifically Named Diseases .
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Birth Defects, Genetic Diseases Research
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136.
SMS Research Foundation
The mission of the Smith-Magenis Syndrome Research Foundation is to advance scientific research leading to innovative treatment options for people living with SMS.
3700
Georgetown
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Specifically Named Diseases
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137.
The Corneal Dystrophy Foundation
http://www. cornealdystrophyfoundation.
3700
San Jose
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Specifically Named Diseases
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138.
Living LFS
Supporting patients with Li-Fraumeni syndrome, an inherited #cancer predisposition.
3564
Shiloh
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Specifically Named Diseases
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139.
Learning Disabilities Association of Illinois Inc
Creating opportunities for success for all individuals affected by learning disabilities through support, education, and advocacy.
3541
Palos Hills
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Specifically Named Diseases
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140.
Freedom Institute Inc
Outpatient Treatment Center for Substance Use Disorders FREEDOM INSTITUTE IS A RESOURCE CENTER FOR INDIVIDUALS AND FAMILIES COPING WITH ADDICTION AND CO-OCCURRING ISSUES SUCH AS DEPRESSION AND ANXIETY.
3500
New York City
Tick-Borne Conditions United
TBC United provides education to healthcare professionals, organizations and the general public about tick-borne conditions.
3495
Pittsboro
Scarring Alopecia Foundation
Cicatricial Alopecia Research Foundation (CARF) is the world's only voice for people with Cicatricial Alopecia Scarring Alopecia Foundation (SAF) is a nonprofit public charity organization and the world's only v The mission of the Scarring Alopecia Foundation (SAF) is to provide education and patient support, raise public awareness, and advance and promote research.
3491
Kulpsville
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Specifically Named Diseases
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143.
Michigan Ovarian Cancer Alliance
Michigan Ovarian Cancer Alliance is dedicated to supporting individuals with ovarian cancer and their families.
3455
Ann Arbor
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Specifically Named Diseases
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144.
Patient Alliance Neuroendocrineimmu Disorders Org for Resech & Adv Inc
Mission is to advocate and restore quality of life for individuals with NeuroEndocrineImmune diseas Through the following efforts, PANDORA seeks to alleviate the suffering caused by NeuroEndocrineImmune diseases, including ME/CFS (myalgic encephalomyelitis / chronic fatigue syndrome), fibromyalgia (FM), multiple chemical sensitivities (MCS) or environmental illnesses (EI), chronic Lyme disease, and Gulf War illnesses (GWI): Advocacy for improving patient quality of life Community awareness projects Patient education programs and conferences Physician education programs Research grants Partnerships with other patient organizations Collaborations with academia and the biotech industryPANDORA advocates for and works toward establishing centers of excellence for research, clinical care, physician education and government services assistance for NEIDs patients and their families .
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