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Specifically Named Diseases

List of non-profit organizations working on Specifically Named Diseases .

Community Rebuilding
  • Birth Defects, Genetic Diseases Research

  • 136.

SMS Research Foundation

The mission of the Smith-Magenis Syndrome Research Foundation is to advance scientific research leading to innovative treatment options for people living with SMS.

Social Rank

3700

Location

Georgetown

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Community Rebuilding
  • Specifically Named Diseases

  • 137.

The Corneal Dystrophy Foundation

http://www. cornealdystrophyfoundation.

Social Rank

3700

Location

San Jose

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Community Rebuilding
  • Specifically Named Diseases

  • 138.

Living LFS

Supporting patients with Li-Fraumeni syndrome, an inherited #cancer predisposition.

Social Rank

3564

Location

Shiloh

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Community Rebuilding
  • Specifically Named Diseases

  • 139.

Learning Disabilities Association of Illinois Inc

Creating opportunities for success for all individuals affected by learning disabilities through support, education, and advocacy.

Social Rank

3541

Location

Palos Hills

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Community Rebuilding
  • Specifically Named Diseases

  • 140.

Freedom Institute Inc

Outpatient Treatment Center for Substance Use Disorders FREEDOM INSTITUTE IS A RESOURCE CENTER FOR INDIVIDUALS AND FAMILIES COPING WITH ADDICTION AND CO-OCCURRING ISSUES SUCH AS DEPRESSION AND ANXIETY.

Social Rank

3500

Location

New York City

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Community Rebuilding

Tick-Borne Conditions United

TBC United provides education to healthcare professionals, organizations and the general public about tick-borne conditions.

Social Rank

3495

Location

Pittsboro

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Community Rebuilding

Scarring Alopecia Foundation

Cicatricial Alopecia Research Foundation (CARF) is the world's only voice for people with Cicatricial Alopecia Scarring Alopecia Foundation (SAF) is a nonprofit public charity organization and the world's only v The mission of the Scarring Alopecia Foundation (SAF) is to provide education and patient support, raise public awareness, and advance and promote research.

Social Rank

3491

Location

Kulpsville

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Community Rebuilding
  • Specifically Named Diseases

  • 143.

Michigan Ovarian Cancer Alliance

Michigan Ovarian Cancer Alliance is dedicated to supporting individuals with ovarian cancer and their families.

Social Rank

3455

Location

Ann Arbor

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Community Rebuilding
  • Specifically Named Diseases

  • 144.

Patient Alliance Neuroendocrineimmu Disorders Org for Resech & Adv Inc

Mission is to advocate and restore quality of life for individuals with NeuroEndocrineImmune diseas Through the following efforts, PANDORA seeks to alleviate the suffering caused by NeuroEndocrineImmune diseases, including ME/CFS (myalgic encephalomyelitis / chronic fatigue syndrome), fibromyalgia (FM), multiple chemical sensitivities (MCS) or environmental illnesses (EI), chronic Lyme disease, and Gulf War illnesses (GWI): Advocacy for improving patient quality of life Community awareness projects Patient education programs and conferences Physician education programs Research grants Partnerships with other patient organizations Collaborations with academia and the biotech industryPANDORA advocates for and works toward establishing centers of excellence for research, clinical care, physician education and government services assistance for NEIDs patients and their families .

Social Rank

3400

Location

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