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Birth Defects, Genetic Diseases

List of non-profit organizations working on Birth Defects, Genetic Diseases .

Community Rebuilding
  • Music

  • 577.

Music Institute of Lexington

To provide opportunities for performance, study, and the therapeutic application of music for individuals in the Central Kentucky Region, regardless of age, race, gender, level of ability, or financial status; in a musically-enriching environment that encourages success, creativity, and personal integrity; thus enhancing lives, broadening the base of support for the arts, and strengthening the community as a whole.

Location

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Community Rebuilding
  • Heart and Circulatory System

  • 578.

Nicholas Viner Heart Foundation

The Nicholas Viner Heart Foundation is a 501(c)(3) nonprofit organization, on a mission to raise awareness and provide direct support to improve the lives of those affected by heterotaxy and congenital heart defects, One Heartbeat at a Time.

Location

Oakdale

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Community Rebuilding
  • Birth Defects, Genetic Diseases

  • 579.

Sickle Cell Disease Association of America

Our mission is to educate the public about Sickle Cell Disease, with special emphasis given to people of child bearing age, while improving the quality of life with direct services for patients and their families that suffer from Sickle Cell Disease.

Location

Affiliate/Chapter of National Organization (i.e. Girl Scouts of the USA

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Community Rebuilding
  • Nerve, Muscle, and Bone Diseases

  • 580.

MHE Coalition

By collecting and sharing the information we obtain from our members as well as the medical and scientific communities, The MHE Coalition hopes to establish a better understanding of MHE and its effects on patients and their families.

Location

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Community Rebuilding
  • Birth Defects, Genetic Diseases

  • 581.

Overcome Birth Defects Inc

Overcome believes empowering those with disabilities is important and strives to connect those with disabilities and their families with resources, referrals and medical providers in the community.

Location

BRADENTON

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Community Rebuilding
  • Birth Defects, Genetic Diseases

  • 582.

Ninjas Fighting Lymphedema

Our Vision is to bring awareness about the devastating effects of lymphedema in our communities and inspire patients to stay compliant with treatments offered.

Location

Clayton

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Community Rebuilding
  • Birth Defects, Genetic Diseases

  • 583.

NEUROFIBROMATOSIS MICHIGAN

The support group goals are to provide emotional support, assist in getting appropriate medical care, educate members and the public, provide current info to the medical community, and encourage research.

Location

Grand Rapids

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Community Rebuilding

The Sickle Cell Foundation of Middle Tennessee

The mission of The Sickle Cell Foundation of Middle Tennessee is to provide education, counseling and patient support services for those who suffer from sickle cell disease as well as other hemoglobin disorders throughout the mid-state.

Location

Spring Hill

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Community Rebuilding
  • Birth Defects, Genetic Diseases

  • 585.

Mellowswan Foundation

We correct the deformities due to congenital malformations, disease or trauma on orphans, that otherwise will never get adopted.

Location

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