Broadscope Disability Services

Broadscope Disability Services advances opportunities for people with disabilities Mission:To advance opportunities for people with disabilities and their families.

• Children's and Youth Services

• 173.

The Foundation for Faces of Children

Our mission is to provide the most accurate, up-to-date, and accessible information about cleft lip, cleft palate, and other head and facial conditions, and to advocate for the best care possible for these patients and their families.

• Birth Defects, Genetic Diseases

• 174.

BPAN WARRIORS

Community resources, research and CONNECTION for BPAN Warrior families (WDR45, NBIA, Rare Disease, Parkinsons, Dementia, Epilepsy, Neurodegeneration, Genetics) BPAN Warriors is a growing international community of individuals who have loved ones directly affec BPAN WARRIORS CONNECT COLLABORATE CURE HOME RESEARCH PATIENT RESOURCES OUR TRIBE OUR PARTNERS DONATE RARE POV BLOG More 414 909BPAN RAREX unveils plan to radically change data collection and sharing to accelerate advances for patients in rare disease How One Rare Disease Advocate Learned to Look Across Diseases Study Makes Economic Case for Benefits of Data Sharing to Improve Diagnosis and Treatment of Rare Disease Patients Harnessing Machine Learning to Improve Diagnosis and Treatment of Rare Diseases Making Collaboration the Rule Rather than the Exception Why Data Sharing Is Critical for Accelerating Progress in Rare Disease PatientPowered Registry Boosts the Study of a Rare Disease What is Data Governance.

• Birth Defects, Genetic Diseases

• 175.

Pathways of Southwestern Pennsylvania Inc

Provides lifelong services to individuals of all abilities through dedication and collaboration, empowering them to reach their full potential.

• Birth Defects, Genetic Diseases

• 176.

Alexandra's House

Alexandra’s House is a community based, all-volunteer, peer-led perinatal hospice and infant care sys To compassionately and lovingly serve those most vulnerable among us, terminally ill unborn-newborn babies, diagnosed before birth with fatal disorders, and any other infants in the community dying from any cause, their friends and families who love and grieve them, bringing meaning to their suffering, being merciful to anyone in need of our care, just as they are, and helping to build a Culture of Love.

• Birth Defects, Genetic Diseases

• 177.

Chicago Center for Jewish Genetic Disorders

Knowledge is the key to prevention. The Center serves as a resource on Jewish genetic disorders, providing public education and professional education, screening and prevention programs, information and referral and by advocating for improved healthcare services.

• Birth Defects, Genetic Diseases

• 178.

Fragile X Resource Center of Missouri

The mission of the Fragile X Resource Center of Missouri is to benefit the lives of individuals with Fragile X Disorders and their families through support, education, public awareness, and advocacy.

• Birth Defects, Genetic Diseases

• 179.

My Xxy

Helping those with genetic differences thrive, starting with the X & Y community.

Happy Brew Inc

Happy Brew provides employment, job training, and leadership opportunities for individuals with intellectual and developmental differences in a community café where hope is shared.