• Alliance/Advocacy Organizations

• 181.

Cystinosis Research Network, Inc.

Cystinosis Research Network is dedicated to supporting research, providing family outreach & educating the public & medical communities about #cystinosis The Cystinosis Research Network is an all-volunteer, non-profit organization dedicated to supporting and advocating cystinosis research.

Brain Injury Alliance of Iowa

To create a better future through brain injury prevention, advocacy, education, research, and support.

• Specifically Named Diseases

• 183.

NATIONAL UREA CYCLE DISORDERS FOUNDATION

Nonprofit supporting patients & families affected by urea cycle disorders.

INFLAMMATORY BREAST CANCER RESEARCH FOUNDATION

Mission:To improve the lives of those touched by inflammatory breast cancer (IBC) through the power of action and advocacy.

Running On Air, Inc

Running On Air, Inc. is a 501(c)(3) working to improve the lives of those on supplemental oxygen and those with lung diseases and rare diseases We are a 501(c)(3) charitable organization whose mission is to help others breathe more easily.

• Alliance/Advocacy Organizations

• 186.

TEAM CAMPBELL FOUNDATION INC

Improving the lives of families impacted by childhood cancer by raising awareness-funding research and providing enrichment opportunities to give them hope We improve the lives of families impacted by childhood cancer by raising awareness, funding research and providing enrichment opportunities that enhance their journey and give them hope today.

• Alliance/Advocacy Organizations

• 187.

Gutless and Glamorous

Gaylyn, Founder #GutlessandGlamorous #AerieReal Model *opinions are my own and not the views of my employer To empower those living with or contemplating ostomy surgery due to illness or injury and to erase the negative stigmas and misconceptions of living with an ostomy Home MissionVision Media Features Support Events GutlessandGlamorous Blog Share Your Story Donate Contact More My body tried to kill me.

• Alliance/Advocacy Organizations

• 188.

Rare-X

PATIENTS' DATA POWERING PROGRESS - RARE-X is expected to become the largest data-sharing initiative focused on rare diseases.

BRAIN INJURY ALLIANCE OF CONNECTICUT INC

Raising voices and visibility, and improving lives through support, education, and advocacy.