• Birth Defects, Genetic Diseases

Curefa Foundation Inc

CUREFA FOUNDATION FUNDS CAPITAL INTENSIVE PROJECTS GATED WITH SUCCESS MILESTONES, LEVERAGING NOVEL TOOLS OF SCIENTIFIC RESEARCH FOR THE TREATMENT AND CURE OF FRIEDREICH'S ATAXIA.

• Birth Defects, Genetic Diseases

Fragile X Resource Center of Missouri

The mission of the Fragile X Resource Center of Missouri is to benefit the lives of individuals with Fragile X Disorders and their families through support, education, public awareness, and advocacy.

• Birth Defects, Genetic Diseases Research

Fragile X Association of Southern California

The Fragile X Association was formed to promote public awareness of Fragile X syndrome with special emphasis on educators and health professionals; provide a forum for families of children with Fragile X to meet and share their ideas, concerns and problems; and support scientific research on Fragile X syndrome.

• Fund Raising and/or Fund Distribution

We Are Fragile X

To financially assist organizations that focus on improving the lives of those with Fragile X syndrome.

• Autism

FRAGILE X ASSOCIATION OF WASHINGTON STATE

News and information from the National Fragile X Foundation about Fragile X syndrome, FXTAS, FXPOI and the other Fragile X-associated disorders To be a resource to parents and families affected by Fragile X.

Pacs1 Syndrome Research Foundation

THE GOAL OF THE PACS1 SYNDROME RESEARCH FOUNDATION IS TO FIND A TREATMENT FOR PACS1 SYNDROME (A DEBILITATING NEURO-GENETIC DISEASE) IN THE SHORTEST POSSIBLE TIME-FRAME BY FUNDING CUTTING-EDGE SCIENTIFIC RESEARCH About Us Contact Registry Scientific Advisory Board Funded Research More Funding Scientific Research to find Treatments for PACS1 Syndrome JOIN US DONATE AND MAKE A DIFFERENCE TODAY.

• Fund Raising and/or Fund Distribution

The Children's Rare Disorders Fund

Dedicated to curing rare genetic disorders Founded in July 2022 by parents of a toddler affected by FOXG1, The CRD Fund focuses on under served communities in the rare disorder space.

• Brain Disorders

THE PIERCE FAMILY FRAGILE X FOUNDATION

The Pierce Family Fragile X Foundation is a non-profit created to fund research, development of treatments, and community awareness to find a cure for Fragile X Created to fund dedicated research, development of treatments, and community awareness for Fragile X The Pierce Family Fragile X Foundation is a nonprofit organization that has been created to fund dedicated research development of treatments and community awareness in support of finding a cure for Fragile X Syndrome affecting our beautiful boys Graham and Reid.

• Fund Raising and/or Fund Distribution

ASXL RARE RESEARCH ENDOWMENT FOUNDATION

Supporting research and education to improve the quality of life for those living with ASXL-related disorders #BohringOpitz #ShashiPena and #BainbridgeRopers We support research and education to improve the lives of families living with ASXL syndromes.

• Birth Defects, Genetic Diseases Research

THE NATIONAL FRAGILE X FOUNDATION

News and information from the National Fragile X Foundation about Fragile X syndrome, FXTAS, FXPOI and the other Fragile X-associated disorders Since 1984, the National Fragile X Foundation has been providing knowledge, resources and tools to families living with Fragile X and the professionals support them throughout their lifespan.