• Alliance/Advocacy Organizations

Hht Foundation International Inc

Cure HHT is the only organization in the US advocating for research, education and a cure for Hereditary Hemorrhagic Telangiectasia, Osler-Weber-Rendu Syndrome The official Facebook page for Cure HHT, the world's leading organization working to raise awareness The mission of the HHT Foundation International is to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected by HHT.

• Cancer

MYELODYSPLASTIC SYNDROMES FOUNDATION

The MDS Foundation is building critical awareness of Myelodysplastic Syndromes (MDS), a rare, often undetected blood cancer.

MOWAT-WILSON SYNDROME FOUNDATION

This is the official page for the Mowat-Wilson Syndrome Foundation.

• Birth Defects, Genetic Diseases

BOHRING-OPITZ SYNDROME FOUNDATION INC

Bohring-Opitz Syndrome Foundation, Inc.

• Specifically Named Diseases

Pmd Foundation A New Jersey Non Profit Corporation

#Research #Awareness #Advocacy & #FamilySupport for those with #PelizaeusMerzbacherDisease #PMD #newbornscreening #raredisease #leukodystrophy #myelin The PMD Foundation is a 501(c)3 non-profit organization formed to serve three distinct interest groups as they relate to Pelizaeus-Merzbacher Disease: The Children and Families, the General Public, the Researchers and Clinicians.

• Specifically Named Diseases

Smith-Kingsmore Syndrome Foundation

Smith-Kingsmore Syndrome is a rare genetic disease.

• Alliance/Advocacy Organizations

Loeys-Dietz Syndrome Foundation

The LDSF is a 501(c)3 non-profit organization organization dedicated to:--encouraging education about Loeys-Dietz syndrome and related connective tissue disorders to medical professionals and lay communities in order to aid in identification, diagnosis and treatment of Loeys-Dietz syndrome--fostering research about Loeys-Dietz syndrome--providing a support network, for individuals, parents and families affected by Loeys-Dietz syndrome This March were celebrating 20 years since LoeysDietz Syndrome was first identified.

• Specifically Named Diseases

Marshall-Smith Syndrome Organization of the USA Inc

The mission of Marshall-Smith Syndrome Organization of the USA, Inc.

• Fund Raising and/or Fund Distribution

BFLS Incorporated

Mom on a mission to raise awareness and funds for research for the rare genetic disorder Börjeson-Forssman-Lehman Syndrome or BFLS� Born Fierce.

• Birth Defects, Genetic Diseases

PRISMS Inc

PRISMS provides support to families of persons with Smith-Magenis Syndrome (SMS) What is SMS.