Sjögren’s Foundation

Creating a community where patients, healthcare professionals & researchers come together to conquer the complexities of Sjögren's.

Cloves Syndrome Community

Support, Research & Education to improve the quality of life for ppl with CLOVES.

Vasculitis Foundation

Awareness. Support. Research. http://www.

• Management & Technical Assistance

Pathways Corp

To elevate the patient's voice to increase access to care and eliminate bias by bringing stakeholders together Home Our Team Events Initiatives Partners Media Kit Contact More Its Time to Listen to the Rare Disease Community.

• Alliance/Advocacy Organizations

Trpm3 Foundation

Patient advocacy and support for those affected by #TRPM3 #ionchannel related disorders.

• Alliance/Advocacy Organizations

HS Connect

We are a nonprofit 501(c)(3) Hidradenitis Suppurativa Org.

• Birth Defects, Genetic Diseases

Shwachman-Diamond Syndrome Alliance Inc

Shwachman-Diamond Syndrome Alliance is a nonprofit aimed at accelerating research and therapy development for this rare disease.

HISTIOCYTOSIS ASSOCIATION INC

Dedicated to raising awareness about histiocytic disorders, providing educational and emotional support, and funding research.

• Birth Defects, Genetic Diseases Research

ADLD CENTER

The ADLD Center is focused on raising awareness about Autosomal Dominant Leukodystrophy ADLD and developing a network of clinicians researchers patients and their caregiversadvocates in order to raise funds as we move forward towards finding a cure.

• Fund Raising and/or Fund Distribution

CHILDRENS PSC FOUNDATION

Help Make Treatment a Cure Donate Now What is PSC.