• Diseases, Disorders, Medical Disciplines N.E.C.

• 1.

U R Our Hope

Non-profit serving individuals with undiagnosed & rare disorders through education, advocacy, and support in order to bring hope through knowledge, empowerment Assisting those with undiagnosed or rare disorders at any age and any stage.

• Diseases, Disorders, Medical Disciplines N.E.C.

• 2.

LYMPHANGIOMATOSIS & GORHAMS DISEASE ALLIANCE INC

Patient-driven solutions for complex lymphatic anomalies: GLA, GSD, KLA, CCLA • Support-Research-Education • Somatic mutations PIK3/mTor & RAS/MAPK pathways Patient advocacy group dedicated to patient driven solutions for complex lymphatic anomalies We connect patients and families to peers and networks of care, partner to advance new research, and educate the medical community to help all people navigating complex lymphatic anomalies have hope for a healthier tomorrow.

Rare New England Inc

Rare New England's Mission is to bring together New England patients and families touched by rare and complex disorders.

• Management & Technical Assistance

• 4.

Pathways Corp

To elevate the patient's voice to increase access to care and eliminate bias by bringing stakeholders together Home Our Team Events Initiatives Partners Media Kit Contact More Its Time to Listen to the Rare Disease Community.

• Birth Defects, Genetic Diseases Research

• 5.

Channeling Hope Foundation

Channeling Hope Foundation A community of researchers and families driven to advance care and develop treatments for those affected by NALCNrelated disorders.

Upequity Corporation

RareRising, is a 501c3 that delivers research, incubates emerging rare disease entities, and explores solutions to positively impact rare disease communities.

• Alliance/Advocacy Organizations

• 7.

Rare Disease Company Coalition Inc

We are a coalition of life science companies committed to discovering, developing & delivering rare disease treatments for the patients we serve.

• Fund Raising and/or Fund Distribution

• 8.

WARDS FOUNDATION

Save the Date for A Rare Affair Saturday February 10 2024 at Charlotte Country Club A unique wine experience with access to rare varietals vineyards and vintages benefiting families facing rare diseases.

• Fund Raising and/or Fund Distribution

• 9.

NORTH CAROLINA RARE DISEASE

Rare Disease Innovations Institute Our Mission RDII is a global nonprofit focused on educating engaging and equipping the rare disease community.