• Fund Raising and/or Fund Distribution

RARE GENOMICS INSTITUTE INC

RGI is a non-profit organization that provides research to families in need of diagnosis & treatment for rare genetic diseases.

Little Hercules Foundation

We serve the rare disease community through access advocacy and good policy.

• Medical Specialty Research

Global Society of Rare Genitourinary Tumors Inc

International Society dedicated to improving the care of rare GU tumors through cutting edge science and the promotion of education.

• Alliance/Advocacy Organizations

Trpm3 Foundation

Patient advocacy and support for those affected by #TRPM3 #ionchannel related disorders.

Petronille Healthy Society

One of our most sacred beliefs is that every life matters.

• Birth Defects, Genetic Diseases Research

Channeling Hope Foundation

Channeling Hope Foundation A community of researchers and families driven to advance care and develop treatments for those affected by NALCNrelated disorders.

Upequity Corporation

RareRising, is a 501c3 that delivers research, incubates emerging rare disease entities, and explores solutions to positively impact rare disease communities.

• Alliance/Advocacy Organizations

Rare Disease Company Coalition Inc

We are a coalition of life science companies committed to discovering, developing & delivering rare disease treatments for the patients we serve.

Rare Access Action Project Inc

RARE ACCESS ACTION PROJECT Providing Education Advocacy Access On Behalf of Rare Disease Patients and Families.

• Fund Raising and/or Fund Distribution

NORTH CAROLINA RARE DISEASE

Rare Disease Innovations Institute Our Mission RDII is a global nonprofit focused on educating engaging and equipping the rare disease community.