Phelan McDermid Syndrome Foundation

Official site of the Phelan-McDermid Syndrome Foundation.

• Fund Raising and/or Fund Distribution

Dravet Syndrome Foundation, Inc.

The mission of DSF is to raise funds for research into Dravet syndrome and related epilepsies, while offering support to patients and families.

MYOSITIS SUPPORT AND UNDERSTANDING ASSOCIATION

MSU, patient-led, all-volunteer nonprofit empowering the #Myositis community.

Center for Ehlers Danlos Syndrome Alliance Inc

Proudly helping those who have EDS and bring awareness to the condition.

• Human Services - Multipurpose & Other N.E.C.

National Pediatric Neuroinflammation Organization

National Pediatric Neuroinflammation Organization Inc.

Prader-Willi Syndrome Association | USA

What’s YOUR story. Tweet us and tell us what it’s like #GrowingUpRare We hope you will suggest the PWSA | USA facebook page to your friends.

• Specifically Named Diseases

Pmd Foundation A New Jersey Non Profit Corporation

#Research #Awareness #Advocacy & #FamilySupport for those with #PelizaeusMerzbacherDisease #PMD #newbornscreening #raredisease #leukodystrophy #myelin The PMD Foundation is a 501(c)3 non-profit organization formed to serve three distinct interest groups as they relate to Pelizaeus-Merzbacher Disease: The Children and Families, the General Public, the Researchers and Clinicians.

HISTIOCYTOSIS ASSOCIATION INC

Dedicated to raising awareness about histiocytic disorders, providing educational and emotional support, and funding research.

• Promotion of Business (Chambers of Commerce)

INTERNATIONAL ASSOCIATION OF

International Association of Orofacial Myology provides information & support for professionals & families seeking guidance on orofacial myofunctional disorders The IAOM is the leading international professional association for orofacial myologists.

• Diseases, Disorders, Medical Disciplines N.E.C.

SIEGEL RARE NEUROIMMUNE ASSOCIATION

SRNA The nonprofit advocating for individuals with rare neuroimmune disorders ADEM AFM MOGAD NMOSD ON TM Help us provide hope and help to those living with ADEM AFM MOGAD NMOSD ON and TM.