• Diseases, Disorders, Medical Disciplines N.E.C.

U R Our Hope

Non-profit serving individuals with undiagnosed & rare disorders through education, advocacy, and support in order to bring hope through knowledge, empowerment Assisting those with undiagnosed or rare disorders at any age and any stage.

Rare Trait Hope Fund

Rare trait Hope Fund facilitates research and provides funding for the development of treatments for a rare disease called Aspartylglucosaminuria (AGU) in hopes to save lives of AGU kids and adults.

• Specifically Named Diseases

NATIONAL UREA CYCLE DISORDERS FOUNDATION

Nonprofit supporting patients & families affected by urea cycle disorders.

• Fund Raising and/or Fund Distribution

Foundation for Children With Atypical Hus

Official page of The Atypical HUS Foundation.

Hope4Harper

Hope4Harper is a grassroots organization designed to provide hope to those living with CDKL5 deficiency and other seizure disorders by fostering awareness and supporting research.

• Private Grantmaking Foundations

Brian J Kelley Foundation for Hope Inc

Through Brian’s Hope, a 501(c)(3) charitable foundation, we look forward to when no child experiences the devastation of adrenoleukodystrophy (ALD) Through Brian’s Hope, a 501(c)(3) charitable foundation, we look forward to a day when no child will experience the devastation of adrenoleukodystrophy (ALD).

• Alliance/Advocacy Organizations

HYPEREMESIS EDUCATION & RESEARCH FOUNDATION

Hyperemesis Education & Research (HER) Foundation provides education & support for mothers suffering from hyperemesis gravidarum and those who care for them.

• Reproductive Health Care Facilities and Allied Services

Everlasting Hope

Home About Resources Grant Program Insurance Coverage Events Donate Shop More Everlasting Hope is here to walk with you through infertility How can we help.

United MSD Foundation

Our mission is simple, yet powerful: To cure Multiple Sulfatase Deficiency.

• Patient Services�Entertainment, Recreation

HAVEN EILEEN KILEY FOUNDATION INC

501c3 helping children sick or in need and the families and facilities that care for them Haven’s Foundation is a 501(c) 3 non-profit organization founded in 2016, after our precious daughter, Haven Eileen, lost her life to a genetic disease.