APBD RESEARCH FOUNDATION

Supporting individuals and families affected by Adult Polyglucosan Body Disease (APBD), and accelerating improved APBD diagnoses, care and treatment options.

Hepatitis B Foundation

The only nonprofit solely dedicated to finding a cure and improving the quality of life for those affected by hepatitis B.

BEYOND BATTEN DISEASE FOUNDATION

Mission: eradicate Batten disease. Batten disease is a fatal neurodegenerative disorder that takes away childhood, and then takes away.

• Arthritis

INTERNATIONAL SCLERODERMA NETWORK

The International Scleroderma Network, home of SCLERO.

American Behcet's Disease Association (ABDA)

Bringing national focus, advocacy, research and awareness of Behcet's Disease Support.

• Fund Raising and/or Fund Distribution

The TBCD Foundation

The TBCD Foundation is a non-profit organization for and by the TBCD Disorder community to raise funds and awareness in order to pursue effective treatments and a cure for TBCD.

• Fund Raising and/or Fund Distribution

Tbc1D24 Foundation

Tbc1d24 foundation is a research organization and connecting site for caregivers, families, and those diagnosed with Tbc1d24 mutations.

• Alliance/Advocacy Organizations

Charlotte and Gwenyth Gray Foundation

Sisters, Charlotte & Gwenyth, were diagnosed w/ Batten Disease, a rare & fatal brain disease.

HISTIOCYTOSIS ASSOCIATION INC

Dedicated to raising awareness about histiocytic disorders, providing educational and emotional support, and funding research.

• Birth Defects, Genetic Diseases

OUR PROMISE TO NICHOLAS FOUNDATION

Established in 2009 as a nonprofit charitable foundation, Our Promise to Nicholas (OPTN) was founded by Chris and Heather Dainiak of Bedford, New Hampshire Working together to understand and cure Batten Disease HOW CAN YOU HELP 1 2 3 HOW CAN YOU HELP Make A Donation Come To Events How To Volunteer Welcome to Our Promise to Nicholas Foundation.