• Bird Sanctuary/Preserve

Kya's Krusade

"A gateway to hope and support, where family, medical and social communities converge.

Kcnq2 Cure Alliance Inc

Our promise is to educate and to advance research leading to treatments or a cure for patients living with the genetic disorder KCNQ2 Raising awareness, educating, and advancing research for KCNQ2 Developmental and Epileptic Encephalopathy.

• Public Health Programs

Kentucky Partnership for Families and Children

TO NURTURE HOPE THROUGH: EDUCATION TO INDIVIDUALS, THEIR FAMILIES, THE PROFESSIONALS THAT SERVICE THEM AND THE PUBLIC; ADVOCACY TO IMPROVE OUTCOMES AND QUALITY OF LIFE FOR CHILDREN, YOUTH AND YOUNG ADULTS; AND REACHING OUT TO GROUPS THAT DO NOT CURRENTLY RECEIVE ADEQUATE SUPPORT.

Cure KCNH1 Foundation

Cure KCNH1 Foundation is dedicated to advancing the development of treatments for children with KCNH1 genetic disorders.

• Professional Societies & Associations

Sturge-Weber Foundation

Embracing our uniqueness. We may be rare, but we're also one in a million.

• Alliance/Advocacy Organizations

Trpm3 Foundation

Patient advocacy and support for those affected by #TRPM3 #ionchannel related disorders.

Kruzn for A Kure Foundation

Kruzn For A Kure Foundation is a non-profit organization funding research for an extremely rare genetic disease & fatal type of dwarfism, #SIOD.

The Kabuki Gathering

To foster connections with families who have a family member with Kabuki Syndrome.

• Patient Services�Entertainment, Recreation

Idefine Inc

IDefine is committed to identifying life-changing treatments & cures and building community for those with Kleefstra Syndrome and intellectual disabilities.

• Fund Raising and/or Fund Distribution

KTs Kids

Providing sports, recreation and fun to children with disabilities.