• Alliance/Advocacy Organizations

Wilson Disease Association

Wilson disease is a genetic disorder of having excessive copper accumulation in the liver or brain that is fatal unless detected and treated Welcome to the official fan page of The Wilson Disease Association International.

• Single Organization Support

INTERNATIONAL WAGR SYNDROME ASSOCIATION

The IWSA represents more than 350 members in 45 countries around the world The mission of the International WAGR Syndrome Association is to promote awareness, stimulate research, and support families affected by WAGR syndrome.

• Specifically Named Diseases Research

The Snow Foundation

A voice for rare disease, working towards a cure for Wolfram syndrome and developing novel therapies for diabetes, vision loss, hearing loss neurodegeneration.

• Fund Raising and/or Fund Distribution

Ellie White Foundation for Rare Genetic Disorders Inc

We will not give up until a cure for Wolfram syndrome is found for Ellie and the children suffering from this disorder.

• Birth Defects, Genetic Diseases

International Rett Syndrome Association, Inc.

We are transforming lives every day in our fight to treat and cure Rett syndrome and better the lives of families living with this devastating disorder.

• Professional Societies & Associations

Sturge-Weber Foundation

Embracing our uniqueness. We may be rare, but we're also one in a million.

WIEDEMANN-STEINER SYNDROME FOUNDATION

The Wiedemann-Steiner Syndrome Foundation provides education, fosters community, and stimulates research to improve the lives of everyone impacted by #WSS.

• Birth Defects, Genetic Diseases Research

International FOXP1 Foundation

Our mission is to build a global community that empowers and supports families and individuals with FOXP1 syndrome by sharing knowledge, inspiring hope, supporting research, and raising awareness.

• Rehabilitative Medical Services

MW FUND INC

As of January 1 2025 the MW Fund has become part of the Thomas E.

International Rett Syndrome Foundation

We are transforming lives every day in our fight to treat and cure Rett syndrome and better the lives of families living with this devastating disorder.