• Alliance/Advocacy Organizations

Alpha 1 Resource Group Inc

At Alpha1 Resource Group (A1R) we strive to enlighten, inspire and improve the quality of life for people living with Alpha-1 Antitrypsin Deficiency and their families OUR MEETINGS Advocate Support Educate Advise Collaborate OUR EVENTS Reaching out to touch the lives of others OUR MEMBERS Meet the people who make our mission possible Who We are.

Who Is Carter Foundation Inc

Nonprofit supporting families of children with brain injury and other neurological conditions July The conversation around brain injury--whether among physicians, families, communities, or society as a whole--is often limiting.

• Birth Defects, Genetic Diseases Research

International FOXP1 Foundation

Our mission is to build a global community that empowers and supports families and individuals with FOXP1 syndrome by sharing knowledge, inspiring hope, supporting research, and raising awareness.

Cure Pogz Disorders Foundation Inc

The ‘Cure Pogz Disorders Foundation’ ( CPDF) Mission is to urgently improve the lives of individuals and families affected by POGZ gene disorders by funding and accelerating cutting-edge science to discover treatments integral to our Path to Cure.

Bep Neurowellness Solutions Inc

Founded in 2023, we are a 501(c)(3) nonprofit that helps individuals with disabling conditions access effective, personalized, whole person care.

NEUROCRITICAL CARE FOUNDATION INC

Working to foster collaborations between individuals and organizations who support and perform neurocritical care related research.

• Neurology, Neuroscience

ATLANTA NEUROSCIENCE FOUNDATION INC

The Philanthropic Arm of Atlanta Neuroscience Institute-formerly Multiple Sclerosis Center of Atlanta Mission Statement Support the Atlanta Neuroscience Institute to provide comprehensive healthcare to all people impacted with neurological conditions through philanthropy and community engagement.

• Specifically Named Diseases

CTNNB1 Connect and Cure Inc

Connecting families, raising awareness, finding treatments and a cure for CTNNB1 Syndrome 🧬💛💙 https://t.

• Birth Defects, Genetic Diseases

HNRNP FAMILY FOUNDATION

Nonprofit dedicated to serving those impacted by HNRNP-Related Rare Neurodevelopmental Disorders through supporting community and research Home Donate Events Learn Projects Join our Registry Join our Researcher Registry Shop Contact and Connect Submit your story HNRNPC Item HNRNPH1RNDD HNRNPH2RNDD More Our Mission The HNRNP Family Foundation is dedicated to improving the lives of patients and families around the world that live with rare HNRNPRelated Neurodevelopmental Disorders HNRNPRNDDs.

• Birth Defects, Genetic Diseases

THINKGENETIC FOUNDATION INC

Helping those living with a genetic disease by shortening the time to diagnose a genetic condition and providing actionable, patient-focused guidance.