• Specifically Named Diseases

• 424.

HEMOCHROMATOSIS INFORMATION SOCIETY

The Hemochromatosis Information Society is a nonprofit organization providing valuable information to patients and physicians concerning hereditary hemochromatosis.

JEFFREY MODELL FOUNDATION

The Jeffrey Modell Foundation is a global nonprofit organization dedicated to Advocacy Research Education Awareness Newborn Screening and Genetic Sequencing for Primary Immunodeficiency.

HASHIMOTOS ENCEPHALOPATHY SREAT ALLIANCE

𝙋𝙧𝙤𝙫𝙞𝙙𝙞𝙣𝙜 𝙥𝙖𝙩𝙞𝙚𝙣𝙩 𝙨𝙪𝙥𝙥𝙤𝙧𝙩 𝙩𝙤, 𝙥𝙪𝙗𝙡𝙞𝙘 𝙖𝙬𝙖𝙧𝙚𝙣𝙚𝙨𝙨 𝙤𝙛, & 𝙢𝙚𝙙𝙞𝙘𝙖𝙡 𝙧𝙚𝙨𝙚𝙖𝙧𝙘𝙝 𝙛𝙤𝙧 𝙃𝙀/𝙎𝙍𝙀𝘼𝙏 & 𝙎𝘼𝙀 Providing patient support to, public awareness of, and medical research for Hashimoto's Encephalopathy (HE)/SREAT and Seronegative Autoimmune Encephalitis (SAE).

• Alliance/Advocacy Organizations

• 427.

Alpha 1 Resource Group Inc

At Alpha1 Resource Group (A1R) we strive to enlighten, inspire and improve the quality of life for people living with Alpha-1 Antitrypsin Deficiency and their families OUR MEETINGS Advocate Support Educate Advise Collaborate OUR EVENTS Reaching out to touch the lives of others OUR MEMBERS Meet the people who make our mission possible Who We are.

• Public Foundations

• 428.

Jonna Foundation Inc

Providing Help Inspiring Hope A Glioblastoma brain cancer diagnosis is one of the most daunting things you can hear a doctor say to you.

• Epilepsy

• 429.

Taylen Lauren Horton Foundation Inc

he Taylen Lauren Horton Foundation was created to not only bring awareness to Dravet Syndrome but to serve as a resource for providing information, motivation and inspiration to current families of children with Dravet Syndrome or those on the spectrum.

• Birth Defects, Genetic Diseases

• 430.

LOVE AN ANGEL FOUNDATION

The Love an Angel Foundation (LAAF) is a 501(c)3 nonprofit organization working to meet the needs of Do you know any Angels.

• Fund Raising and/or Fund Distribution

• 431.

CURE RARE DISEASE INC

Nonprofit biotech leading a global collaboration to develop life-saving medicines for rare diseases Revolutionizing UltraRare Disease Treatment through Innovation and Collaboration Revolutionizing UltraRare Disease Treatment through Innovation and Collaboration What Wex27re Working Towards We envision a future where every patient has access to treatment.

• Specifically Named Diseases

• 432.

ALL THINGS KABUKI INC

All Things Kabuki is a registered 501(c)3 non-profit dedicated to supporting families affected by Kabuki syndrome.