• Specifically Named Diseases Research

• 181.

Coalition Duchenne

We're on a mission to do everything FUN to raise global awareness for Duchenne muscular dystrophy, to fund research for a cure.

• Fund Raising and/or Fund Distribution

• 182.

Cure Lgmd 2T Inc

🧬 Genetic Testing Access 🗒️ Patient Registry 🔬 Advancing and Funding Research 📚 Educating & Raising Awareness Help Us Cure LGMD 2T Limb Girdle Muscular Dystrophy Our mission is dedicated to raising awareness for Limb Girdle Muscular Dystrophy 2T and providing critical funding for research into effective treatments.

• Specifically Named Diseases Research

• 183.

The Snow Foundation

A voice for rare disease, working towards a cure for Wolfram syndrome and developing novel therapies for diabetes, vision loss, hearing loss neurodegeneration.

• Nerve, Muscle, and Bone Research

• 184.

FSHD Society

World’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD).

WIEDEMANN-STEINER SYNDROME FOUNDATION

The Wiedemann-Steiner Syndrome Foundation provides education, fosters community, and stimulates research to improve the lives of everyone impacted by #WSS.

• Public Foundations

• 186.

US Mef2C Foundation Inc

To accelerate R&D to find treatments and a cure for individuals with MEF2C related disorders, and to provide support to the MEF2C Community.

Lcc Foundation Inc

The LCC Foundation’s MISSION is to help families across the United States and beyond diagnosed with Leukoencephalopathy with Brain Calcifications and Cysts (LCC) by giving them the resources they need to fight this rare and devastating disease.

• International Development, Relief Services

• 188.

Zanaria Human Aid Foundation Incorporated

ZANARIA HUMANAID FOUNDATION ZHAF Nonprofit CharityOrganization humanaidzanariya.

• Birth Defects, Genetic Diseases

• 189.

DESSH

Join the DeSantoShinawi SyndromePATIENT REGISTRYpowered by About Us DESSH Syndrome News Events Get Involved Legal and Privacy More DESSH is short forDeSantoShinawi Syndrome.