• Services to Promote the Independence of Specific Populations

• 19.

Lilis Lift Inc

Provides one-time home renovation projects to improve the quality of life for families with disabled children.

Rett Syndrome Research Trust, Inc.

Fighting to cure Rett Syndrome and MECP2 related disorders.

• Birth Defects, Genetic Diseases

• 21.

Southeastern Rett Syndrome Alliance

TO DEVELOP UNDERSTANDING AND AWARENESS OF RETT SYNDROME; TO PROMOTE THE GENERAL WELFARE OF THOSE WITH RETT SYNDROME; TO ASSIST IN IDENTIFYING PERSONS WITH RETT SYNDROME; TO SUPPORT FAMILIES IN COPING WITH THE DISORDER, AND CONDUCT ACTIVITIES AIMED AT PREVENTION, TREATMENT AND ERADICATION OF RETT SYNDROME Be sure to grab some Awareness Items in the Research Dr.

MOWAT-WILSON SYNDROME FOUNDATION

This is the official page for the Mowat-Wilson Syndrome Foundation.

• Services to Promote the Independence of Specific Populations

• 23.

Project Strong Inc

Strong missioN Our mission at Project Strong is to empower children and young adults living with neuromuscular diseases discover and express their unique strengths by providing educational programs activities events that meet their needs.

• Birth Defects, Genetic Diseases Research

• 24.

International FOXP1 Foundation

Our mission is to build a global community that empowers and supports families and individuals with FOXP1 syndrome by sharing knowledge, inspiring hope, supporting research, and raising awareness.

• Birth Defects, Genetic Diseases

• 25.

Mitchell and Friends Foundation

To raise awareness of Mitchell Syndrome and support research into possible treatments and cures Raising awareness of Mitchell Syndrome and supporting families and children with this rare neurological disease.

Lightning and Love Foundation

Founder of Lightning and Love foundation and mom to two ultra-rare THAP12 genetic epilepsy disease daughters searching for a cure.

• Birth Defects, Genetic Diseases Research

• 27.

THE NATIONAL FRAGILE X FOUNDATION

News and information from the National Fragile X Foundation about Fragile X syndrome, FXTAS, FXPOI and the other Fragile X-associated disorders Since 1984, the National Fragile X Foundation has been providing knowledge, resources and tools to families living with Fragile X and the professionals support them throughout their lifespan.